Wednesday, November 04, 2020

Doc. Rocksy Menjelaskan:

I forgot to record the session (again) so what I'm writing here is a more-or-less and conclusion things :)

1. First mistake: I made the appointment at 11am. Knowing that I was going to take some kind of a test, 11am is too late. DON'T DO IT AGAIN!!!

2. This time I did remember to give the stickers to the nurse, letting The Rocks know that I was already in the waiting room. Thank God! :))

3. The Rocks wasn't very happy when she saw my Buku Harian Epilepsi. "Wah banyak sekali kejangnya!" she commented. I was... Well... All I could do was grin and said "Yah... Gimana dong..." My "self-defense" was that the seizures happened on the timeline during Kukka's exams and graduation from elementary school. Followed by a couple of exams and acceptance to junior high. Also because of Bapak's passing... Yes... I'm still very sad about it. I told The Rocks (in tears) that I still cry whenever I remember Bapak. As a matter of fact I'm shedding tears like...right this second...

4. The COVID-19 pandemic. I'm sure I'm not the only one who is stressed out because of it. Why am I stressed out? Well... Obviously I'm sort of disappointed that Kukka still can't go to school and make new friends in person. This whole School From Home thing is not good for my kid (yours probably too...). She's spending more and more time looking at screens, computer and cellphone, because she has to (and of course she's enjoying it very much -_-). Another thing that pisses me off is I can't go and enjoy my weekly pilates session with Mba Ira :( Believe it or not I really miss pilates. Not only the session but also the me-time I always have when I go to Perfect 10. Having coffee and snack before or after the session in random cafes, enjoying all the way from home to Dharmawangsa Square. And many other things. Being in constant fear, uncertainties, paranoia, disappointment and anxiety because of this god damn virus makes me... Not very well. I told The Rocks all about it.

5. I took a memory test yesterday and it was EXHAUSTING!!! I forgot the doctor's name who did the test with me. How ironic :D It was a young man and he was very nice. The things he said and the way he explained the tests were very clear. The young doctor was very patient too. But I think when I started to have a minor seizure during the test, he looked kinda... Worried? Well excuse me, doc! But I was in the hospital from 10:38am - 3:09pm!!! What do you expect? :)) Young doc immediately called The Rocks, who still had a patient with her when I started to shiver. The seizure ended when The Rocks came. Couldn't explain anything to her but the young doc did that already (probably even better than me). As conclusion: it was because I WAS EXHAUSTED. And to make it even worse the tests scores are not so good. Oh by the way the memory tests' names were MMSE and MoCA

6. Homework from The Rocks: continue the daily afternoon walk, which she thinks is a very good thing (as long as I have someone with me and I'm not tired). Also the blogging, writing project and keep on drawing! Because my memory is getting worse I have to read a book. Preferably a book with short stories or an article and then write a review about it like 1-2 pages based on what I remember. NO CHEATING! :p

7. My beloved doctor said that she has another patient who has the same illness like mine and the patient is pretty depressed about it :( Then somehow her patient came across/being told about my blog and has been reading about my "adventure". Somehow my stories is helping the patient. Good to hear :) Then The Rocks started to go on about why me not making some sort of a community that can help each other. Hmmm... Okay doc... I'm taking it into consideration :) I mean I can hardly remember what to do tomorrow :)) How can I take care of a community???? 

8. Tegretol's (white pill) dose is changed (back?) to 3 times a day because of all the seizures I'm having :( 

9. Next exam February 2021: Lab and abdominal CT Scan. She told me we already did it (5 years ago when I was submitted to the hospital) since one of the causes of Autoimmune Encephalitis is a tumor in the abdomen. The Rocks told me that the next one is not a must. More like an evaluation. Should I?

Anyway... November's session is done. Very long but pretty okay. It took hours and hours and it made the maids AND Ari, the driver, very worried. They kept sending me texts, asking me whether I was okay and where I was. The maids and Ari got even more worried because I didn't reply any of their texts :))) At the end of the day I managed to go home with a light heart and a pretty calm mind. And when I arrived at home I slept and I slept and I slept like the dead. 

I would love to end this post with a major thank you to my favorite doctor. And this time I didn't forget to take our 3-monthly picture!! YEAY! :)